Cerebellar Cognitive Affective Syndrome identified in Spinocerebellar Ataxia Type 21

Posted on January 9, 2015January 5, 2017 by Jason MacMore

Cognition is affected in many of the inherited ataxias, and sometimes that is the main problem patients have to deal with. We recently teamed up with colleagues in Brazil to draw attention to the existence of the cerebellar cognitive affective syndrome (CCAS) in Spinocerebellar Ataxia Type 21 (SCA 21). This is described in our letter and reply just published in the journal, Brain; Cognition in SCA...

Neurology Podcasts

Posted on March 21, 2013January 5, 2017 by Chris Metsala

Dr. Jeremy Schmahmann, Director of the Massachusetts General Hospital Ataxia Unit and Director of the Laboratory for Neuroanatomy and Cerebellar Neurobiology, is currently featured on the March 5th, 12th, and 19th Neurology Podcasts produced by the American Academy of Neurology. These free podcasts, which are available on iTunes, include interviews with ataxia experts Dr. Schma...

Sad News

Posted on September 30, 2011January 5, 2017 by Chris Metsala

On September 30, 2011, Catie Lake, the inspiration for MindLink Foundation, passed away at her home in Virginia. She was 26 years old. All of those who knew this beautiful young woman with her infectious smile were inspired by her strength, courage, and will to overcome the spinal cerebellar ataxia (SCA 17) that limited her life. MindLink Foundation was founded and supported by Catie's family, fri...

Hermes Creative Award for 2010

Posted on April 26, 2010January 5, 2017 by Chris Metsala

We are proud to announce that the Mindlinkfoundation website won the Hermes Gold Award as the top website in the "pro bono" category in an international competition. It is a recognition of the outstanding design work and site content contributed by HDN Studio of Alexandria, VA which designed the website, along with the art work contributed by Catie Lake and the substantive materials provided...

MINDlink Foundation Launches to Connect the Cerebellum to Cures

Posted on November 19, 2009January 5, 2017 by Chris Metsala

Pioneering Neurologist Closer to Understanding BrainWiring and Diseases WASHINGTON, D.C. – Dr. Jeremy Schmahmann, Professor of Neurology at Harvard Medical School and neurologist at the Massachusetts General Hospital in Boston, today presented his laboratory’s research on the new field of study called “Connectivity”at the launch of the MINDlink Foundation. Dr. Schmahmann is an award-winning leader...

The Sorcerer’s Apprentice – Unlocking the secrets of the brain’s basement: Jonathan Leonard, Harvard Magazine, May–June 1998

Posted on November 17, 2009January 5, 2017 by Chris Metsala

Harvard MagazineJonathan LeonardMay–June 1998 The patient was a high-powered Boston executive. Her job was making hard decisions, thinking on her feet, juggling several projects at a time. But one day she realized that something had gone wrong. She found her concentration wavering; decisions that were normally second nature came slowly; and handling many things at a time seemed impossible. She cou...